Friday 15 March 2013

Misdiagnosis.....

So my last past was hideous, I was having a severely bad week, alot of anxiety and stress and I'd reached some sort of breaking point. Very unpleasant! 

Anyway, so those of you who have been reading will know that I have been participating in some CBT therapy given to me by the NHS and so far I've praised it pretty highly. So I've seen my therapist Rebecca 5 times up to this point and so far we are still at assessment stage, trying to find out what exactly is going on with me, where is started, why it started, etc etc! I was convinced that I was suffering with GAD (Generalized anxiety disorder) but during our sessions, Rebecca was finding it hard to establish a link between the anxiety and any triggers. I started keeping a diary for her which had the following columns:

- Situation & Trigger
- Emotions 0-100% (physical sensations)
- Initial thought, worry, image, doubt or feeling
- Worry about initial thought or image 
- Alternative response to worry

This diary isn't easy to fill out, it makes you scrutinise how you feel and this for some people (people like me!) can exaggerate the intensity. But, IT IS WORTH CONTINUING. so through these diaries, she has been trying to look for patterns, triggers, situations that may be contributing to my bizarre feelings and sensation. Sometimes an outsider may be able to see something you can't. 

I left last weeks session with the diary then this week came back as normal and we discussed what she had noticed whilst reading it. She came to the conclusion that she thinks I am suffering with panic disorder rather than GAD because it strikes me randomly and because to be honest I'm not worrying about any particular thing, apart from these horrible feelings and sensations I get. 

Now there is a difference between Anxiety disorders and Panic disorder. I'm inserting a link here if you'd like to have a little read! 

Basically though, GAD is anxieties over everyday life events, people being late, mess, money, friends, etc. Panic disorder is often triggered by a stressful event, people find it so alarming and distressing they live in fear of the feeling, creating a relentless cycle of worrying about panic. ME!!!

http://panicdisorder.about.com/od/relatedconditions/a/PDandGAD.htm

There is also something that runs alongside Panic Disorder called 'Limited Symptom Attacks'. This I suffer with HUGELY. Now I was never aware of this disorder or these symptoms. Basically this is less than 4 of the symptoms of a panic attack happening at one time, but lasts a lot longer than a normal 5-20 minute panic attack. But by no means any less frightening! So I've been living most of my days with this LSA disorder, confusing it with GAD. It's nice to know exactly what the problem is. 

A full blown panic attack has to consist of 4 or more of these symptoms:

- Shortness of breath
- Heart palpitations
- Trembling
- Dizziness
- Chest Pain
- Perspiration
- Hot Flashes
- Headache
- Derealization
- Hyperventilation
- Nausea
- Vertigo 
- Lightheadedness
- Burning sensations
- Choking sensations 
- Fear of dying 
- Fear of insanity 

A LSA attack is fewer than 4 of these. Now I have ranged from 3 - 14 of these symptoms at any one time. Yuk. For the most part I've gotten away with hiding it, those around me wouldn't know. But for a few unfortunate times, I literally couldn't hide it. The dizziness and tingles were too hard to act normal around. It's very distressing to let people see you in any state other than normal and happy, but unfortunately with these kind of disorders it's inevitable! 

I had my first panic attack in front of a client this week. I was devastated. It was one I literally couldn't hide. Fortunately she herself used to suffer and she was very sympathic. I was crushed I hadn't been able to hide it, but the force if it, out of nowhere, literally smashed into my body. She was brilliant, was just hard to accept I think. 

Anyway, the point I am trying to make, is I do feel alot of hope. Much more then before. I AM NOT GOING MAD. My fight or flight reflex has gone into overdrive and giving me a real hard time. But I am ready to find that control switch and put it back into a normal mode. I am bloody bored of it, tired of it and I've seriously had enough. 

For those of you who haven't tried CBT, I urge you to try. And give it your all. Those of you who have and felt like it didn't help, you had a bad therapist or bad treatment from the NHS, try again? A new therapist, a new perspective? I'm so glad I took the plunge. I'm not there yet, but I feel like I'm on the right road to teaching myself this isn't my fault, and it is a physical reaction that's going on within my body. 

I hope this has been helpful to some of you!

X

1 comment:

  1. Thank you for sharing. I am starting CBT this week, I have some exercises to write down and some literature to read. I'm nervous but hopeful and your experience has given me more hope :) Thank you! Gilly @AnxietyCentral

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